Hope & Truth Telling
(From: EPEC -Fast Facts, Authors: Eric Warm , MD and David E. Weissman, MD)
The miserable have no other medicine; But only hope.
William Shakespeare (1564-1616) Claudio, in Measure for Measure act 3, sc.1.
It is always difficult to balance between maintaining hope and truth telling, especially as it applies to giving bad news. One of the most difficult things physicians do is give bad news. Medical students and residents are often afraid that by telling someone the truth about his/her diagnosis, they will be responsible for taking away hope. And yet, are physicians really that powerful? Isn't it possible that our fear of causing the loss of hope is just another way we can avoid the harsh reality of impending death? This conflict, between truth-telling and fear of destroying hope, is commonly noted by patients and families who feel that "the doctor is not really telling me everything", a feeling that is highly corrosive to the doctor-patient relationship.
Brody writes, "Hope means different things to different people, and different things to the same person as he/she moves through stages of illness''. The physician can play a valuable role in helping the individual patient define their hopes and fears. When close to death, hope often becomes refocused away from long-term goals and towards short-term or spiritual goals. Hope may mean a pain free day, a sense of security, love and non-abandonment, or a wedding to attend in the near future. "When we talk to patients and find out what is really worrying them, we can almost always give them realistic assurances". Factors that often increase hope in the terminally ill include feeling valued, meaningful relationships, reminiscence, humor, realistic goals, and pain and symptom relief. Factors that often decrease hope include feeling devalued, abandoned or isolated ("there is nothing more that can be done"), lack of direction and goals, and unrelieved pain and discomfort.
Some strategies for beginning a dialogue about hope and goals include:
Ask the patient, "Do you have long term hopes and dreams that have been threatened by this illness?" Support the patient in recognizing and grieving the possible loss of these hopes
Ask the person if there are particular upcoming events they wish to participate in--a wedding, birth, trip, etc.
Ask "What are your hopes for the future?" and "Do you have specific concerns or fears?"
Encourage the patient to make short, medium and long range goals with an understanding that the course of terminal illness is always unpredictable.